Celiac Disease Public Policy
America is far behind other countries and requirements for transparency in food labeling. We have nothing to lose and everything to gain for supporting legislation on making this information transparent so those with celiac disease and food allergies can navigate life safely. This will only happen if we collectively make this a priority. Let’s hold each other accountable and do our part.
Please read about the below legislation to support and TAKE ACTION where appropriate. Sample letters have been provided. Copy, paste, edit and send off!
1) Support the ADINA Act to label gluten in medication
The Allergen Disclosure In Non-Food Articles (ADINA) Act; To amend the Federal Food, Drug, and Cosmetic Act to require the label of a drug intended for human use to identify each ingredient in such drug that is, or is derived directly or indirectly from, a major food allergen or a gluten-containing grain, and for other purposes.
The ADINA Act—H.R. 3821—is officially back in Congress! The bill was reintroduced into the 119th Congress on Friday, June 6, 2025, thanks to Congresswoman Kelly Morrison (MN-03). She is joined once again by returning co-lead Rep. Mike Lawler (R-NY-17), along with Rep. Doris Matsui (D-CA-07) and Rep. Ben Cline (R-VA-06).
What you can do: Contact your U.S. Representatives and urge them to co-sponsor H.R. 3821. Click here to find your Representative.
Sample letter fron ADINA website can be at the end of this post.
2) More Transparent Food Labeling Requirements: Support the Food Labeling Modernization Act to label gluten in food
The FLMA would amend the Food Allergen Labeling and Consumer Protection Act (FALCPA) to require that food product packaging disclose ALL gluten-containing grains (wheat, barley, and rye) in the ingredient list and/or “Contains” statement on ingredient labels.
As of June 2025, the FLMA is in the process of being reintroduced to Congress. Stay tuned for more information and to support the FLMA.
3) Representative Betty McCollum officially launched the bipartisan House Celiac Disease Caucus by circulating a Dear Colleague letter requesting House members to join.
Rep. McCollum has celiac disease and has been a driving force in compelling the National Insitute’s of Health (NIH) to fund celiac disease research for the past two years.
The strength of this Caucus will be instrumental in securing NIH funding and legislation to improve the quality of life of those with celiac disease.
NCA urges you to ask your Members of Congress to add their names to the growing list of Celiac Disease Caucus members. Feel free to use any portion of this letter (click here to download the letter) in your message to your Members of Congress. Click below for an easy way to contact your local Members of Congress.
Please contact Pat Maillet at patrick.maillet@mail.house.gov with Rep. Betty McCollum’s office with any questions about the Celiac Disease Caucus.
Resources: NCA and Celiac Disease Foundation
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Adina Act-Sample Letter
Dear Representative [INSERT LAST NAME],
My name is [YOUR FULL NAME], and I am a constituent in your district. I am writing to ask you to cosponsor H.R. 3821, the bipartisan Allergen Disclosure in Non-food Articles (ADINA) Act.
[ Select or personalize your reason below: ]
I live with [ a life-threatening food allergy / Celiac Disease / Eosinophilic Esophagitis / other food allergic disease ]
My [ child/spouse/loved one ] is one of over 33 million Americans with a life-threatening food allergy.
Our family lives in constant fear of hidden allergens in medication due to a lack of labeling transparency
Currently, there is no federal requirement to disclose whether medications contain a major food allergens or gluten. You can walk down any aisle of the grocery store and see allergen warning labels on any packaged product, but that protection ends at the pharmacy. This puts millions of Americans at unnecessary risk, especially vulnerable children and individuals with chronic medical conditions.
In 2019, an 11-year-old girl tragically died after using a prescription containing her known allergen, dairy, which her family had no way of knowing about. ( Source: https://www.allergicliving.com/2019/04/15/after-daughters-fatal-reaction-to-toothpaste-mother-calls-for-caution/ )
Medications like Prednisone, Claritin, Advair, Montelukast, and Benadryl – often prescribed because of allergic reactions, can contain hidden allergens such as milk (lactose), putting patients in danger when they’re most vulnerable.
The ADINA Act, introduced by Reps, Kelly Morrison (D-MN-3), Mike Lawler (R-NY-17), Ben Cline (R-VA-6), and Doris Matsui (D-CA-7), will require clear, plain-language labeling of all major food allergens and gluten containing grains in both over-the-counter and prescription medications.
With over 100 million Americans affected by food allergies, Celiac Disease, EoE, FPIES, Alpha-Gal Syndrome, and other related conditions, this bill is a common-sense solution to close a dangerous and long-standing safety gap.
Please stand with families like mine.
Cosponsor the ADINA Act (H..R. 3821) today.
Thank you for your time and leadership.
